eNewsletter
June 2008
In This Issue…
One man shares his story on how he kept his passion for truck driving alive!. [more]
CILCP’s role in bringing awareness of disability related issues to the forefront of legislators, organizations, businesses and the public. [more]
For those who love the water, we’ve found something you may enjoy![more]
Grab your calendar and mark down the upcoming events and conferences related
to the disability community, not only in PA, but all over the country! [more]
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On the Road Again to Inspire
“It’s easier to go to bed with success if you wake up with determination.” This
is a quote by a man, Barry Owens, whose life changed in a truck accident. On
November 19, 1981, Barry laid his foot on the brake, but at his dismay, the
brake locked, causing the truck to crash, and sending him to the hospital.
It was in the hospital that he found out that he was paralyzed from the waist
down. He was devastated at first, but then he was quickly inspired (realized
he could be dead), knowing everything happens for a reason.
Barry’s family offered him help but he said, “I am going to try to make it
on my own.” With courage and support from his wife (Kathy) they started down
a new road, not knowing where it would take them. But, it wasn’t before long
that Barry realized how much he missed the life on the road; therefore, he
began trying to get back into it.
“I faced many obstacles to get my CDL (Commercial Driver’s License); not only
did I have to take a state test, but I also had to take a federal test. After
acquiring all of my licensure, I had to have a special waiver mandated by the
orthopedic counsel,” stated Barry. Nevertheless, in May 1992, Barry met all
of the requirements and he was ready to work.
Once he had the proper licensure, the next task was to design a truck in which
he could get in and out of with ease. To do this, he took a lift out of a school
bus and retro-fitted it to work in the truck.
For the next three years Barry hauled any loads he could find to make ends
meet. In 1995, he found a company who provided him the chance to show he could
run with any other drivers. At the end of 90 days, he was in the top 10% of
all of the drivers and never looked back.
In 2006, Barry had logged over 1.75 million miles and he was on his third
truck (which had over one million miles on it). Barry knew it was time
to get a new truck; but instead of buying one, he decided to re-build his old
truck. He was going to make a state-of-the-art vehicle with the latest technology,
such as air disk brakes, a camera system with a recorder, a select comfort
bed – all of which would be new to the trucking world and help promote the
industry. In fact, Barry even has a fold up bed with two wheelchair tie downs
under it, so he can give two individuals in wheelchairs the opportunity to
ride in his truck.
Now, with his state-of-the-art truck, Barry’s plan is to have companies sponsor
him to travel across the country and promote the trucking industry as a profession,
and give others the drive they need to make their life more complete.
According to Barry, “Being in a wheelchair is 25% physical and 75% mental;
the only limitations that exist are the ones in your head.”
Barry has a Web site that features the truck that he has built and photos
of its accessibility. Visit the Web site at www.determinationtransportation.com
for additional information.
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Breaking Down the Barriers
The month of May not only gave us hope that warmer weather was approaching,
but the month also stood for Barrier Awareness Month.
For the disability community this month is dedicated to bringing awareness
to the public, lawmakers, politicians and educators in Pennsylvania regarding
the issues surrounding the barriers for people with disabilities.
Barrier Awareness Month reminds organizations, individuals and communities
the importance of advocacy and what it can accomplish. The Center for Independent
Living of Central PA (CILCP) continues to advocate for its consumers, and all
people with disabilities. Whether it’s identifying barriers in the community
and working with the businesses or organizations to fix them, or contacting
the legislators to affect change in policy, CILCP has made significant contributions
in grassroots advocacy.
CILCP’s overall mission through the organization and the Living Well With
A Disability program is to empower people with disabilities to fully
participate in all aspects of society, and live well no matter what the disability.
CILCP strives to empower and encourage people with disabilities to speak
for themselves and others on their rights and privileges. CILCP assists individuals
in developing self-advocacy skills to uphold their rights under the (Americans
with Disabilities Act) ADA and other civil rights laws.
CILCP provides a number of advocacy programs including local systems advocacy,
statewide advocacy, and individual advocacy. The local systems advocacy involves
the formation of local consumer groups to work on disability issues that are
of concern to them. CILCP advises and assists people with disabilities to eliminate
practices and barriers that prohibit access and inclusion in the community.
In an effort to address these issues, an Action Team (Accessible Communities
Today (ACT)) is formed in the area and assistance is provided by a community
organizer via CILCP. Issues that have been addressed by CILCP have involved
curb cuts; accessibility of restaurants, restrooms, public buildings; and,
availability of housing and transportation.
The Statewide Action Team brings together the disability community across
Pennsylvania to identify issues worthy of statewide efforts. Local groups are
developed to address statewide issues such as Attendant Care or PA Transportation.
CILCP assists individuals in forming groups in local areas should one need
to be established.
In 1999, CILCP along with Accessible Communities Today conducted the “Midtown
Sweep” in Harrisburg – identifying buildings and businesses in Midtown Harrisburg
that needed to be accessible. Because of their efforts, businesses were made
aware of the importance of accessibility, and moved to comply with ADA. The
goal of the Midtown Sweep was to enforce Title III of ADA and it was accomplished.
The detailed article can be read at www.cilcp.org/publications/grassroots_advocacy.php.
From advocating on behalf of parents with children with disabilities, to assisting
individuals to move into the community with appropriate support from nursing
homes, CILCP has stood by individuals’ sides in addressing the issues at hand.
For more information on CILCP’s advocacy efforts, please contact Gil Selders
at gselders@cilcp.org.
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A Face-Splashing, Clothes-Drenching Adventure
For those who love the water, we’ve found something you may enjoy!
At first, it’s not really a recognizable rumble. It’s more like that first
hint of thunder that you’re not quite sure you really heard, long before the storm clouds come into view. Or
the faint sound of a distant jet, somewhere near the horizon.
Paddles dip lazily in the still smooth flow of crystal clear water that’s
drifting quietly over broad, turtle shaped boulders just under the surface
of the river. And a dozen rafts filled with novices float toward a bend in
the river that the river guides moments earlier described as “the beginning
of the gorge,” where dozens of face-splashing, clothes-drenching drops leave
everyone soaked and screaming for more.
This is whitewater rafting through the Lehigh River Gorge in the Poconos. And
it’s the kind of user-friendly, eco-adventure that’s suited for just about
every age and ability level. Trips through the Upper and Lower Gorge
feature miles of Class II and III rapids. At most river levels, these
are appropriate for novices age 10 and older. The lower section of the
river is a bit milder (mainly Class I and II rapids) and is well-suited
for families with youngsters age 5 and older.
Whitewater Challengers first introduced guided whitewater rafting trips to
the Lehigh River in 1974, and since then has taken more than a million and
a half guests on more than 19 million miles of guided river tours. (That's
equivalent to going to the moon and back ... 19 times!)
According to president and co-founder Ken Powley, “Most of those guests were
first time rafters, and a very large percentage has been boy scouts, girl scouts,
school groups and families. There are a lot of rivers out there that
are tougher for the real adrenaline junkies, but for a fun day out with your
kids, surrounded by spectacular scenery and the excitement of soaking whitewater,
you just can’t beat the Lehigh.”
Thanks to its user-friendly rapids, easy access, and guide-assisted format,
the Lehigh is also a terrific destination for individuals with disabilities. Rafts
are incredibly stable, even in class III whitewater, and guides in kayaks accompany
every trip to help anyone if needed. As Powley points out, though, this
is a participation sport. Everyone paddles, and each rafting team is
responsible for negotiating its way through the rapids. Sometimes that
means making quick, sharp turns; threading the needle between house-size boulders;
or staying on the main current to avoid gravel bars or other obstacles.
Part of the joy of rafting at the Lehigh is the sense of accomplishment that
comes from “doing it
yourself.” Each trip begins with a Safety Talk at the put-in point. Your
lead guide explains safety and how-to tips, such as how to: paddle; steer a
raft in turbulent water; properly sit in the raft so it lessens the chance
of falling out; self-rescue if you do fall out; splash without hurting yourself
or others; the importance of teamwork within your raft; and lots of other safety
and how-to tips that come in handy throughout the day. While it’s difficult
to say that any disability can be safely accommodated, Whitewater Challengers
makes every effort to accommodate individuals. The team has hosted dozens of
veterans, and others with disabilities, over the years. Whitewater Challengers
does ask that if a person with a disability is interested, to please call ahead
to verify whether your individual accommodations can be met.
In addition to providing guides and instructions, the Whitewater Challengers
provide all the equipment needed, shuttles to and from the river, and meals
depending on the date and trip offered. The shuttles are not wheelchair accessible.
Rafters may bring a lunch, and may want to bring a dry change of clothes! The
final requirement that’s asked of all rafters is to bring a smile and good
sense of adventure!
“We pride ourselves on bringing this experience to as wide of an audience
as possible. It’s just too awesome of a trip for anyone to miss. We like
to hear from our guests in advance, fully understand their needs, and have
the opportunity to share with them as much detail as possible regarding the
risks (and rewards!) of a whitewater rafting trip on the Lehigh. We recognize
that every person and every group is unique. And we rely on our 34 years
of experience in addressing those unique interests and needs,” Powley says.
For more information about Whitewater Challengers, visit the Web site
at http://www.whitewaterchallengers.com or
call 800-443-7238.
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Events to Mark on Your Calendar!
When: June 7, 2008
Where: Long's Park, Lancaster
When: June 9-12, 2008
Where: Radisson Hotel Pittsburgh Green Tree
101 Radisson Drive
Pittsburgh, PA 15205
When: June 21, 2008
Where: Coleman Memorial Park, Lebanon
When: June 21-24, 2008
Where: Grand Hyatt hotel in Washington, DC.
NCIL will provide an exercise in civil rights that includes voting,
organizing communities, and a march in D.C. that ends in a Rally at
the Capitol!
When: Saturday June 28, 2008
Where: Advocate Illinois Masonic Pediatric
Developmental Center
3040 N. Wilton, 2nd FloorChicago, IL 60657
Time: 9:30 a.m. – 2:00 p.m.
Family SIBDAY is a day for brothers and sisters of children with Down
syndrome. It is intended to foster close family relationships.
When: July 9, 2008
Where: The Spikes
Time: 7:05 p.m.
When: July 9-12
Where: Orlando, Florida
The conference addresses the variety of autism’s issues through
the advice of family members and professionals.
When: July 11,13, 2008
Where: Seaport World Trade Center Boston Harbor
When: July-24, 2008
Where: Grand Hyatt Hotel, Washington,
D.C.
The National Council on Independent Living will hold it’s annual
conference.
When: July 21, 2008
Where: Club at Nevillewood
The tournament includes greens fee, cart, lunch and a cocktail reception
and dinner. Cost is $375 for single, and $1500 for foursome. For more
information call the foundation office at 412.261.5886 or register
online.
When: September 14, 2008
Where: City Island, Harrisburg
When: September 21, 2008
Where: Lehigh Parkway, Allentown
For more information, contact the Pocono/Northeast office at 1-888-995-8787
or Janice Liddic at Janice@lupuspa.org.
When: October 5, 2008
Where: Nay Aug Park, Scranton
For more information, contact the Pocono/Northeast office at 1-888-995-8787
or Janice Liddic at Janice@lupuspa.org.
When: October 19, 2008
Where: Kirby Park, Wilkes Barre
For more information, contact the Pocono/Northeast office at 1-888-995-8787
or Janice Liddic at Janice@lupuspa.org.
When: November 2008
Where: TBA
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We welcome information regarding upcoming events, conferences
or workshops related to the disability community. Please email your information to
.
While every effort is made to ensure the accuracy of the information, the
Center for Independent Living of Central PA (CILCP) make no guarantees. CILCP
recommends that if a person with a disability is interested in an activity
or event listed on the Web site, to please contact the organization hosting
the event/activity to verify whether your individual accommodations can be
met.
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