eNewsletter

May 2009

Click here to download a PDF of this newsletter.

In This Issue…

I believe in myself and plan on living my life to the fullest.

Seventeen year-old Kate Fisher offers advice to other teens with disabilities. [more]

Providing the Opportunity to Live Independently

Centers for Independent Living offer Personal Assistance Services to people with disabilities. [more]

Three Rivers Center for Independent Living Opens New Fitness Center

First recreational gym in the Pittsburgh area offers fitness opportunities for people with disabilities. [more]

Events to Mark on Your Calendar

Grab your calendar and mark down the upcoming events and conferences related to the disability community, not only in PA, but all over the country! [more]

Pass It On!

Know someone else who may be interested in receiving the Living Well With A Disabiliity e-newsletter? Tell them to visit our Web site, and sign up today!

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Events to Mark on Your Calendar!

Myasthenia Gravis Foundation of America

When: 1st Sunday of each Month
Time: 1:00 – 2:30 p.m.
Where: Milton S. Hershey Medical Center
500 University Drive - Hershey, PA
Phone: 717-581-1271
Email: AmishParrothead@AOL.Com

The Myasthenia Gravis Foundation of America (MGFA) has 30 chapters throughout the US. They are dedicated to fighting myasthenia gravis, a chronic autoimmune neuromuscular disorder. The chapters offer support groups and programs for patients and their families.

TRAS Bowling League

When: Tuesdays
Time: 6:30 p.m. – 8:30 p.m.
Where: Funfest Entertainment Center - Harmarville, PA
Phone: 412-848-8896
Email: MARK4TRAS@comcast.net

Three Rivers Adaptive Sports (TRAS) provides a non-competitive bowling league that is open to people with disabilities, and friends and family members of people with disabilities. Adaptive equipment is available. The cost is $10 per person.

Parent-for-Parent Support Group

When: 1st Wednesday of every month
Time: 6:00 p.m. – 8:30 p.m.
Where: The Resource Center Staff and Training Center – Jamestown, NY
Email: trctkerzner@windstream.net

The Resource Center hosts a monthly parent/caregiver support group. The support group provides an opportunity for families to discuss triumphs, challenges, issues, and concerns facing individuals with special needs.

What’s Out There and How to Get It

When: May - June, 2009
Time: 10:00 a.m. – 1:00 p.m.
Where: Jewish Child Care Association – Bronx, NY

Resources for Children with Special Needs, Inc. presents a free training series for families and professionals, which focuses on programs and services for children with disabilities. To find the location of each seminar, visit www.resourcesnyc.org.

What’s Out There and How to Get It

When: May, June, 2009
Time: 10:00 a.m. – 1:00 p.m.
Where: Bronx Family Center of the Children’s Aid Society – Bronx, NY
Phone: (212) 677-4650
Email: gshulman@resourcesnyc.org

Resources for Children with Special Needs, Inc. presents a free training series for families and professionals that need programs and services for children with disabilities. To find out the location of each monthly seminar, visit www.resourcesnyc.org.

Legal Issues Webinar Series: Employment and the ADA

When: May - September, 2009
Time: 1:00 p.m. – 2:30 p.m.
Phone: (877) 232 - 1990
Email: gldbtac@uic.edu

Equip for Equality’s online educational seminar occurs once a month and covers a variety of topics surrounding individuals with disabilities. This series focuses on employment issues and disability discrimination.

Tennessee Disability Mega Conference

When: May 28-30, 2009
Time: 8:00 a.m.
Where: Nashville Airport Marriot – Nashville, TN
Phone: 1-800-835-7077
Email: info@thearctn.org

This annual event allows individuals with disabilities to participate in interactive workshops, attend educational sessions, learn about disability products and services, take part in evening events, and attend an award banquet.

Abilities Expo: Anaheim

When: May 29-31, 2009
Where: Anaheim Convention Center, California
Phone: (310) 450-8831 ext. 130
Email: info@abilitiesexpo.com

The Abilities Expo welcomes people with disabilities, their family members and caregivers, health care professionals and sponsors to attend the event. Attendees will learn about technologies, products, services, education curriculum, and career opportunities for people with disabilities. In addition, special events will be held.

21st Annual Postsecondary Disability Training Institute

When: June 2-6, 2009
Where: Philadelphia, PA
Contact: Carrol Waite
Phone: (860) 486 – 3321
Email: carrol.waite@uconn.edu

This training program is designed to aid professionals in meeting the needs of college students with disabilities.

NCIL Annual Conference 2009

When: June 5-8, 2009
Where: Grand Hyatt - Washington, D.C.
Phone: (202) 207-0334
Email: ncil@ncil.org

The National Council of Independent Living is hosting a conference, “Believe: We Are Better. Reenergize, Reorganize, Reauthorize!” The conference will provide individuals with disabilities and centers across the country an opportunity to confront complacency, cynicism and resignation.

National Traumatic Brain Injury Caregiver’s Conference

When: June 6, 2009
Where: Williamsburg Hospitality House Hotel & Conference Center – Williamsburg, Virginia
Contact: Linda Nowsherwan
Phone: (703) 451-8881

This conference will include presentations, workshops, and lectures on topics such as rehabilitation, finding and utilizing services, and rebuilding relationships. Caregivers of individuals who have suffered a traumatic brain injury are encouraged to attend.

2009 National ADA Symposium

When: June 8-10, 2009
Where: Hyatt Regency Crown Center – Kansas City, Missouri
Email: hamburgl@missouri.edu

The symposium includes keynote speaker Senator Tom Harkin, fifty-six break-out sessions for groups effected by and involved with the ADA, and round table sessions. National experts will provide information about the ADA and related disability laws.

Building a Better Tomorrow: Best Practices in the Support of People with Disabilities

When: June 9-11, 2009
Where: Sheraton Sports Complex – Kansas City, Missouri
Contact: Sandy Baker Adams
Phone: (785) 296-6090
Email: sba@kni.ks.gov

The Kansas Neurological Institute is sponsoring a conference that will offer sessions on intellectual disabilities and aging, self-advocacy, community inclusion, assistive technology and more.

AAID 133rd Annual Meeting

When: June 9-12, 2009
Where: Ritz Carlton – New Orleans, Lousiana
Contact: Joanna Pierson

The theme of the conference is “Creating Enviable Lives: The Business Plan.” It is designed for people with developmental disabilities, families, advocates and health care professionals.

2009 Mental Health America Centennial Conference & Gala

When: June 10-13, 2009
Where: Hyatt Regency Washington – Capitol Hill, Washington, D.C.
Phone: (703) 684-7722

The conference will feature inspiring speakers who will talk about how to overcome future mental health challenges.

Camp Lily

When: June 15 – August 14, 2009 (various sessions)
Where: 1040 Liggett Avenue - Reading, PA
Phone: 610-775-1431
Email: michele.rittle@easterseals-easternpa.org

Sponsored by the Easter Seals of Eastern PA, Camp Lily is a six-week summer camp for children ages 8 to 21, with and without disabilities. Children will enjoy the fun of summertime together. Activities include games, singing, arts and crafts, swimming, and field trips. Guests are welcome to teach about special topics.

2nd ABA National Conference on Employment of Lawyers with Disabilities

When: June 15 - 16, 2009
Where: Marriott Wardman Park Hotel
2660 Woodley Rd - NW Washington, DC

This event is for law firms and other legal employers, federal agencies, law students and lawyers with disabilities, and national disability organizations. The conference aims to encourage legal employers, particularly corporations and law firms, to pledge to promote diversity in the workplace with an emphasis on hiring and retaining lawyers with disabilities.

Hearing Loss Association of America Convention 2009

When: June 18-21, 2009
Where: Gaylord Opryland Resort & Convention Center – Nashville, Tennessee
Phone: (301) 657 - 2248
Email: convention@hearingloss.org

Any members of the public who suffer from hearing loss are invited to attend this conference. Attendees will obtain information on hearing loss, technology, and hearing assistance.

25th Anniversary Special Family and Professionals Conference

When: June 18-21, 2009
Where: Hyatt Regency – Cincinnati, Ohio
Phone: (800) 886-1762
Email: info@fsma.org

The Families of Spinal Muscular Atrophy are holding a conference to provide individuals with an opportunity to network with other families, attend workshops, and interact with leading researchers around the world who are working to develop treatments and cures for Spinal Muscular Atrophy (SMA).

Camp Frog

When: June 21 - 27, 2009
Time: All Day
Where: Camp Conrad Weiser (Southeastern PA) - Wernersville, PA
Phone: 1-800-361-5885
Email: staff@efwp.org

Sponsored by the Epilepsy Foundation of Western/Central Pennsylvania, Camp Frog is a weeklong, overnight summer camping program for children in grades 4-11 with epilepsy and/or seizure disorders. It provides activities including archery, horseback riding, climbing towers, sand volleyball, basketball, soccer, paintball, riflery, miles of hiking trails, nature studies, arts and crafts, fishing and much more.

RESNA Annual Conference

When: June 23 - 27, 2009
Where: Sheraton New Orleans Hotel - New Orleans, Lousiana
Phone: (703) 524-6686 / TTY: (703) 524-6639

The Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) conference is designed by and for people interested in using assistive technology to improve the quality of life for persons with disabilities. Assistive technologists, rehabilitation engineers, therapists, educators, researchers, counselors, manufacturers/suppliers, people with disabilities, students, and AT program directors are encouraged to attend.

Eagle Springs Programs

When: June 24 - August 13, 2009 (Various sessions)
Where: 58 Eagle Springs Lane- Pine Grove, PA
Phone: (570) 345-8705
Email: info@eaglespringsprograms.com

Eagle Springs Programs provide summer camps as well as weekend vacations for adults with intellectual and physical disabilities. Activities include art, crafts, music, dance, sports, drama, swimming and fishing. In addition, there is a small farm where camp participants may interact with a variety of farm animals and go horseback riding.

Camp Lee Mar

When: June 25 - August 14, 2009 (Various sessions)
Where: 450 Route 590- Lackawaxen, PA
Phone: 215-658-1708
Email: gtour400@aol.com

Camp Lee Mar provides a place where children with learning and developmental disabilities can have all the experiences of “Camp.” Activities include baseball, basketball, fishing, boating, swimming, drama, zip line, soccer, arts and crafts, dancing, and more.

Summit Camp & Summit Travel

When: June 25 - August 30, 2009 (Various sessions)
Where: 168 Duck Harbor Rd.- Honesdale, PA
Phone: (800) 323-9908
Email: info@summitcamp.com

Summit Camp & Travel is offered to kids age 8-17, who share difficulty in making and maintaining peer relationships. Students with clinical diagnoses such as Attention Deficit Disorder (ADD and/or ADHD), Asperger’s Syndrome, Verbal or Non-Verbal Learning Disabilities, Tourrettes syndrome, O.C.D., and /or mild mood disorders often attend the camp.

Abilities Expo: Chicago

When: June 25-27, 2009
Where: Schaumburg Convention Center- Chicago, Illinois
Time: Thurs.: 11 a.m.- 5 p.m. Fri.: 10 a.m. – 5 p.m., Sat. 10 a.m.- 4 p.m.
Phone: (310) 450-8831 ext. 130
Email: info@abilitiesexpo.com

The Abilities Expo welcomes people with disabilities, their family members and caregivers, health care professionals and sponsors to attend the event. Attendees will learn about technologies, products, services, education curriculum, and career opportunities for people with disabilities. In addition, special events will be held.

Camp Frog

When: July 5 - 11, 2009
Time: All Day
Where: Camp Frog at Camp Conrad Weiser (Southeastern PA) - Wernersville, PA
Phone: 1-800-361-5885
Email: staff@efwp.org

Sponsored by the Epilepsy Foundation of Western/Central Pennsylvania, Camp Frog is a weeklong, overnight summer camping program for children in grades 4-11 with epilepsy and/or seizure disorders. It provides activities including archery, horseback riding, climbing towers, sand volleyball, basketball, soccer, paintball, riflery, miles of hiking trails, nature studies, arts and crafts, fishing and much more.

Camp Make-A-Friend

When: July 7 - August 8, 2009
Where: 3501 Solly Avenue- Philadelphia, PA
Phone: 215-879-1000
Contact: Betty Ingram

Easter Seals of Southeastern Pennsylvania will hold Camp Make-A-Friend for children with disabilities. Children will be able to participate in age appropriate activities such as arts and crafts, swimming, music, athletics, group games, nature activities and special events. All activities are adapted to the campers' specific needs, providing them with a summer filled with therapeutic recreational activities.

Autism Society of America

When: July 22-25, 2009
Where: Pheasant Run Resort and Spa – St. Charles, Illinois
Contact: Meg Ellacott
Phone: (302) 206-9487
Email: ellacott@autism-society.org

The ASA National Conference is the largest autism conference in the nation welcoming professionals, exhibitors, parents and family members, and individuals to discuss topics including legal issues, treatment-guided research and social skills.

Camp Speers-Eljabar YMCA

When: July 28 - August 22, 2009 (Various sessions)
Where: 143 Nichecronk Road- Dingmans Ferry, PA
Phone: 877-773-3779
Email: campers@campspeersymca.org

Camp Speers-Eljabar YMCA is a program for individuals with mild to moderate developmental disabilities to participate in traditional camping activities. Campers are housed with a lower staff to camper ratio (1:3) to ensure that their personal needs are met.

National Disability Sports Conference

When: September 10-12, 2009
Where: Kennesaw State University in Kennesaw, Georgia
Phone: (770) 850-8199
Email: jjones@blazesports.org

This conference will include interactive and hands-on sessions on topics such as program development and coaching. The nation’s best sports professionals, coaches, and Paralympic athletes will be in attendance to discuss training techniques.

Abilities Expo: Atlanta

When: November 5-7, 2009
Where: Cobb Galleria Convention Center - Atlanta, Georgia
Phone: (310) 450-8831 ext. 130
Email: info@abilitiesexpo.com

The Abilities Expo welcomes people with disabilities, their family members and caregivers, health care professionals and sponsors to attend the event. Attendees will learn about technologies, products, services, education curriculum, and career opportunities for people with disabilities. In addition, special events will be held.

“Deaf Cruise” Presented by The Tri State Deaf Club

When: November 7, 2009
Where: Bayonne, NJ (Cape Liberty Cruise Port) to Kings Wharf, Bermuda
Contact: Tammy Williamson
Phone: (908) 782-3712

The Tri State Deaf Club is hosting a 5-night “Deaf Cruise.” Information including costs for rooms are available at the Web site. Final Payment is due August 22, 2009.

Arc of the United States National Convention

When: November 11 – 14, 2009
Where: David L. Lawrence Convention Center
1000 Fort Duquesne Boulevard
Pittsburgh, PA 15222
Phone: (301) 565 – 3842 or (800) 433-5255
Email: info@thearc.org

The Arc provides information, services, and support for families and individuals with intellectual and developmental disabilities. Visit the Arc’s Web site for the convention’s schedule of events.

The National Foundation for the Blind of Central Pennsylvania State Convention

When: November 13 – 15, 2009
Where: Harrisburg, PA
Phone: 215-988-0888
Email: nfbofpa@att.net

This convention is sponsored by Pennsylvania Parents of Blind Children (PAPOBC). It will feature counseling/support groups, information about parenting/transitioning, workshops and presentations. It is for parents of, and individuals up to age 26 who have visual impairments.

NCD's National Summit on Disability Policy

When: July 26 – 27, 2010
Where: Washington, D.C.

The National Council on Disability will celebrate the 20th anniversary of the ADA with people with disabilities and prominent stakeholders, including federal, community, and private sector disability experts.

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We welcome information regarding upcoming events, conferences or workshops related to the disability community. Please email your information to .

While every effort is made to ensure the accuracy of the information, the Center for Independent Living of Central PA (CILCP) make no guarantees. CILCP recommends that if a person with a disability is interested in an activity or event listed on the Web site, to please contact the organization hosting the event/activity to verify whether your individual accommodations can be met.

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