eNewsletter
September 2009
Click here to download
a PDF of this newsletter.
In This Issue…
Hear from 28-year old Stephanie Tate and how working has helped her
to live well! [more]
Learn how a Center for Independent Living may be able to help you
find employment. [more]
Get outside this fall and enjoy all the fully accessible trails and
camping features PA state parks have to offer! [more]
Grab your calendar and mark down the upcoming events and conferences
related to the disability community, not only in PA, but all over the
country! [more]
Pass It On!
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How My Job Has Changed My Life
Stephanie Tate
My name is Stephanie Tate and I am 28 years old and live on the South Side
of Pittsburgh. I have had Cerebral Palsy since birth and, as a result, use
a power wheelchair for mobility. When I am not working, I enjoy playing with
my dog, going to the movies, finding walking paths through Pittsburgh, and
basically anything that involves being outdoors!
I currently work for UPMC (University of Pittsburgh Medical Center) Health
Plan as a customer service representative for the Insurance Services Division.
However, getting here wasn’t so easy…
I graduated from Edinboro University in 2005 with my Master’s degree
in Communication Studies. Shortly after graduating I started a job
with TRCIL (Three Rivers Center for Independent Living). I worked as
a service coordinator for individuals with disabilities that live in
nursing homes and taught them basic living skills, such as: calling
and scheduling a ride on the local transit, encouraging them on how
to voice their opinions in an assertive and constructive manner, and
many other duties as well.
A friend from college then referred me to Bender Consulting Services, who
set me up with an interview at UPMC Health Plan. I interviewed with UPMC and
two days after the interview they chose me as a potential employee. I would
be subcontracted under Bender Consulting but work and perform required duties
at UPMC in a temporary position. Then, if UPMC decided to hire me as a direct
staff member they could. I had no idea what I was in for because everything
happened so fast.
When I first moved to Pittsburgh it was extremely hard to find an apartment
– so I lived in a hotel with my mom for three months. It was very frustrating
because what a landlord considers “accessible” and what really is are two different
things. Finally, after endless searching and many tears I found an awesome
fully accessible apartment on the South Side of Pittsburgh. My parents helped
me move my things in and shortly after that I got enrolled in personal attendant
care services. My mom then left and it was me and my dog on our own. It was
scary at first because I knew no one in Pittsburgh. While all the chaos was
happening in my personal life I still continued to work for Bender consulting
at UPMC Health Plan.
I worked as a Customer Service Representative for the Insurance Services Division
of UPMC Health Plan. I was responsible for taking inbound telephone calls and
answered questions relating to medical benefits, claims, and billing. This
job was great for me because I did everything on my own! I worked on the telephone
and the computer all day and didn’t need any physical assistance to complete
my job.
I am the only person at the Health Plan with a “visible disability” so it
was very interesting at first. My supervisors and managers were always asking
me how I was and if I needed anything. UPMC was very accommodating to me as
far as accessibility. They installed power operated doors where I worked so
that I was able to get in and out freely. They widened a bathroom stall so
that my wheelchair could fit and they lowered a microwave for me so that I
could use it independently in the cafeteria. One piece of advice that I can
give to other people with disabilities is that someone doesn’t know that you
need assistance until you tell them. My manager at first understood very little
about my disability because she told me I was “the first” that she ever had.
I continued to work as a Customer Service Representative and was hired by
UPMC directly in April of 2008. My job responsibilities are about the same
but with a few added responsibilities.
I have been able to live well with a disability because my job has taught
me several things. I can be a productive, independent, self sufficient individual.
My disability does not stop me! My job has inspired me to become more independent
and as a result I am in physical and occupational therapy to be taught how
to do more for myself and also in June I am scheduled to start driving lessons!
I would have never wanted to do this before. My job through TRCIL and UPMC
has changed my life in ways that I could have never imagined!
A piece of advice that I want to give to other people with disabilities is
best quoted by Albert Einstein in which he states "In the middle of difficulty
lies opportunity." Life will not always go as smoothly as we want but
keep striving for what you want and the possibilites are endless.
Written by: Stephanie Tate
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Centers for Independent Living Assist Consumers in
Finding Employment
The main goal of Centers’ for Independent Living (CILs) is to assist people
with disabilities in making personal choices and living independently. If someone’s
goal is to become employed, a Center for Independent Living will work with
the individual in setting the groundwork to get a job and maintain steady work.
Setting the groundwork may include assisting a person with a disability find
a place to live, get personal care, find assistive equipment, or organize public
transportation to get to and from the job.
CILs can also assist people with disabilities by keeping an eye out for job
opportunities. To help locate jobs, CILs, such as the Center for Independent
Living of Central PA (CILCP), often refer consumers to Employer Networks. Employer
Networks are approved agencies that assist people with disabilities in locating
jobs available. Employer Networks also provide job training and aid consumers
in adjusting to new co-workers, supervisors and work environments. Once a job
is identified, CILs offer support by assisting the individual with the job
application process, and going to the interview (if requested).
In addition, there are a number of employment programs available for people
with disabilities. As an example, CILCP works with consumers to establish Plans
for Achieving Self-Support (PASS) with the Social Security Administration.
PASS allows a person with a disability receiving SSI (Supplemental Security
Income) to set aside a portion of their earnings for future job-related items
and not be charged fees for the "extra"
income. Another employment program which CILs may refer people to is the Ticket
to Work program. Qualified individuals are provided a ticket that can be given
to an Employer Network in exchange for the Employer Network’s services.
Another service often used by people with disabilities who are seeking employment
is the Office of Vocational Rehabilitation (OVR). For example, the Three Rivers
Center for Independent Living (TRCIL) has an OVR counselor who comes in and
meets with consumers to determine if they are eligible for OVR services. These
services include: vocational and diagnostic evaluations, medical services and
equipment, funding for training, job search and placement assistance, and assistive
technology. Volunteer opportunities are also explored for individuals who may
not be ready for paid employment, but who still want to participate in their
community.
Living Well With A Disability means different things to different people.
Many people realize that having a job is much more than simply earning money.
Working can provide people with a sense of who they are. It also allows them
to take part in their community, develop new relationships, and much more.
If someone with a disability has the goal to volunteer or become employed,
CILs can make that goal a reality through their services and dedication.
To learn about CILCP’s services, contact:
(717) 731-1900 / (800) 323-6060
Fax (717) 731-8150
TTY: (717) 737-1335 / TTY: (800) 829-7404
Web site: www.cilcp.org
To learn about TRCIL’s services, contact:
Phone: (412) 371-7700
Toll Free (PA Only): 1-800-633-4588
Fax: (412)371-9430
TTY: (412) 371-6230
Web site: www.trcil.org
For other locations, or to locate a CIL near you, contact:
Voice/TTY: (717)
920-0530 or (866) 302-7245 [PCIL]
Fax: (717) 920-0532
Web site: www.pcil.net
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Experience the Great Outdoors at French Creek State Park
Offering
Fully Accessible Trails and Camping Features
Goose family
French Creek
State Park is one of the Department of Conservation
and Natural Resources’ (DCNR) state parks in Pennsylvania. The park
is located in Berks County and it offers many ADA accessible features
that make it a beautiful location to get outside and enjoy nature
and the fall colors. Wetlands and streams flow through rich valleys,
and the forest is made up of large oak, poplar, hickory, maple, and
beech trees. Beginning in the mid-1800s, nearly all the forests in
Pennsylvania were harvested by the developing nation for agriculture
and wood products. The land surrounding
French Creek State Park was timbered several times since the 1700s for the
production of charcoal to fuel the iron industry at Hopewell National Park.
Park Ranger, Phil McGrath (pictured center) designs
ADA trails and leads group tours at French Creek.
Trails & Picnics
ADA accessible trails cover wooded areas and are located along Hopewell
Lake. The trails go through several accessible picnic areas overlooking
the lake. These scenic trails also provide a home for various plants,
animals, and wildlife. ADA trail group tours are given by Park Ranger,
Phil McGrath.
Fishing at the lake.
The Lake
Hopewell Lake provides 68 acres of prime water. Visitors may fish
on the fully accessible fishing pier that goes out into the lake. A
wide variety of Pennsylvania warm water fish including, northern
pike, chain pickerel, bass, walleye, and many others, can be found
at the lake. For more information about fishing at this location, please
visit the French Creek
State Park Web site. For other places to fish throughout Pennsylvania,
please visit the Pennsylvania Fish and Boat Commission.
Camping
French Creek State Park also has several accessible cabins. These cabins have
ramps, low counters and sinks, and other accommodations. In addition to French
Creek, there are 22 state parks with fully accessible cabins for people with
disabilities. For further information, please visit the Pennsylvania Bureau
of State Parks’ Cabins Page.
To locate the nearest park and information about accessibility, please
visit PA State
Parks or PA Greenway
and Trails.
For more information about
French Creek, call 610-582-9680 or email frenchcreeksp@state.pa.us.
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Events to Mark on Your Calendar!
When: 1st Sunday of each Month
Time: 1:00 – 2:30 p.m.
Where: Milton S. Hershey Medical Center
500 University Drive - Hershey, PA
Phone: 717-581-1271
Email: AmishParrothead@AOL.Com
The Myasthenia Gravis Foundation of America (MGFA) has 30 chapters throughout
the US. They are dedicated to fighting myasthenia gravis, a chronic autoimmune
neuromuscular disorder. The chapters offer support groups and programs for
patients and their families.
When: Tuesdays
Time: 6:30 p.m. – 8:30 p.m.
Where: Funfest Entertainment Center - Harmarville, PA
Phone: 412-848-8896
Email: MARK4TRAS@comcast.net
Three Rivers Adaptive Sports (TRAS) provides a non-competitive bowling league
that is open to people with disabilities, and friends and family members of
people with disabilities. Adaptive equipment is available. The cost is $10
per person.
When: 1st Wednesday of every month
Time: 6:00 p.m. – 8:30 p.m.
Where: The Resource Center Staff and Training Center – Jamestown,
NY
Email: trctkerzner@windstream.net
The Resource Center hosts a monthly parent/caregiver support group. The support
group provides an opportunity for families to discuss triumphs, challenges,
issues, and concerns facing individuals with special needs.
When: July – September 2009
Time: 1:00 p.m. – 2:30 p.m.
Phone: (877) 232 - 1990
Email: gldbtac@uic.edu
Equip for Equality’s online educational seminar occurs once
a month and covers a variety of topics surrounding individuals with disabilities.
This series focuses on employment issues and disability discrimination.
When: September 30-October 2, 2009
Where: Albuquerque, New Mexico
The main conference theme is Disability in America: Inalienable Rights for
All. Special emphasis themes are addressing the long-term challenges faced
by wounded warriors, and improving quality of life of people with disabilities
through evaluating disability programs, policies and services. At the Southwest
Conference on Disability, we explore what we have in common, and how we can
create a mutual agenda that goes beyond a particular perspective, group or
disability.
When: October 10, 2009
Where: John Rudy Park - 400 Mundis Race Rd York, PA 17406
Phone: 717-801-1272
Email: walk@autismyork.org
Autism York is holding a walk that will be held rain or shine. Registration & donation
collection begins at 9:00 a.m. Walk kickoff is at 10:00 a.m. Plan to complete
your walk along a partially shaded, paved 1 mile path, anytime between 10:00
a.m. - 2:00 p.m. Free face painting & bounce houses for the kids! Autism
Awareness Items, Baked Goods, Bricker’s French Fries and Bruster’s Ice Cream
will be available for purchase.
When: October 26-28, 2009
Where: Pittsburgh Marriott City Center
112 Washington Place
Pittsburgh,PA 15219
Phone: 412-471-4000
The ASSETS conference explores the use of computing and information technologies
to help persons with disabilities and older adults. ASSETS is the premier forum
for presenting innovative research on the design and use of both mainstream
and specialized assistive technologies.
When: November 5-7, 2009
Where: Cobb Galleria Convention Center - Atlanta, Georgia
Phone: (310) 450-8831 ext. 130
Email: info@abilitiesexpo.com
The Abilities Expo welcomes people with disabilities, their family members
and caregivers, health care professionals and sponsors to attend the event.
Attendees will learn about technologies, products, services, education curriculum,
and career opportunities for people with disabilities. In addition, special
events will be held.
When: November 7, 2009
Where: Bayonne, NJ (Cape Liberty Cruise Port) to Kings Wharf,
Bermuda
Contact: Tammy Williamson
Phone: (908) 782-3712
The Tri State Deaf Club is hosting a 5-night “Deaf Cruise.” Information including
costs for rooms are available at the Web site. Final Payment is due August
22, 2009.
When: November 11 – 14, 2009
Where: David L. Lawrence Convention Center
1000 Fort Duquesne Boulevard
Pittsburgh, PA 15222
Phone: (301) 565 – 3842 or (800) 433-5255
Email: info@thearc.org
The Arc provides information, services, and support for families and individuals
with intellectual and developmental disabilities. Visit the Arc’s Web site
for the convention’s schedule of events.
When: November 13 – 15, 2009
Where: Harrisburg, PA
Phone: 215-988-0888
Email: nfbofpa@att.net
This convention is sponsored by Pennsylvania Parents of Blind Children (PAPOBC).
It will feature counseling/support groups, information about parenting/transitioning,
workshops and presentations. It is for parents of, and individuals up to age
26 who have visual impairments.
When: November 18-21, 2009
Where: Pittsburgh, PA
The TASH Conference is the largest and most progressive conference in the
United States that focuses on strategies for achieving full inclusion for people
with disabilities. n Lodge Camp
2010 Events
When: May 21-23, 2010
Where: New Jersey Convention & Expo Center - Edison, NJ
Phone: (310) 450-8831 ext. 130
Email: info@abilitiesexpo.com
The Abilities Expo welcomes people with disabilities, their family members
and caregivers, health care professionals and sponsors to attend the event.
Attendees will learn about technologies, products, services, education curriculum,
and career opportunities for people with disabilities. In addition, special
events will be held.
When: July 26 – 27, 2010
Where: Washington, D.C.
The National Council on Disability will celebrate the 20th anniversary
of the ADA with people with disabilities and prominent stakeholders, including
federal, community, and private sector disability experts.
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We welcome information regarding upcoming
events, conferences or workshops related to the disability community.
Please email your information to
.
While every effort is made to ensure the accuracy of the information,
the Center for Independent Living of Central PA (CILCP) make no guarantees.
CILCP recommends that if a person with a disability is interested in an
activity or event listed on the Web site, to please contact the organization
hosting the event/activity to verify whether your individual accommodations
can be met.
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